{"id":163965,"date":"2022-02-10T11:29:08","date_gmt":"2022-02-10T10:29:08","guid":{"rendered":"https:\/\/datascientest.com\/?p=143427"},"modified":"2022-10-31T22:51:26","modified_gmt":"2022-10-31T22:51:26","slug":"le-health-data-hub-une-base-de-donnees-medicale-qui-fait-polemique","status":"publish","type":"post","link":"https:\/\/datascientest.com\/le-health-data-hub-une-base-de-donnees-medicale-qui-fait-polemique","title":{"rendered":"Le Health Data Hub, une base de donn\u00e9es m\u00e9dicale qui fait pol\u00e9mique"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"163965\" class=\"elementor elementor-163965\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1172ead e-flex e-con-boxed e-con\" data-id=\"1172ead\" data-element_type=\"container\" data-settings=\"{&quot;content_width&quot;:&quot;boxed&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-871f820 elementor-widget elementor-widget-heading\" data-id=\"871f820\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.15.0 - 02-08-2023 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">La Plateforme de partage des donn\u00e9es de sant\u00e9, dont l\u2019autorisation est pour l\u2019instant suspendue, est destin\u00e9e \u00e0 favoriser la recherche. Son h\u00e9bergement chez Microsoft Azure fait pol\u00e9mique, au nom de la souverainet\u00e9 europ\u00e9enne des donn\u00e9es.\u00a0<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f9df033 elementor-widget elementor-widget-text-editor\" data-id=\"f9df033\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.15.0 - 02-08-2023 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>L\u2019id\u00e9e premi\u00e8re \u00e9tait pourtant noble. <strong>Une plateforme centralis\u00e9e rassemblant<\/strong> <a href=\"https:\/\/datascientest.com\/data-science-sante-medecine\">les donn\u00e9es de sant\u00e9<\/a> de tous les fran\u00e7ais. Cr\u00e9\u00e9 en 2019, le Health Data Hub a pour mission de <strong>faciliter le partage des donn\u00e9es de sant\u00e9<\/strong>, afin de favoriser la recherche. La plateforme permet \u00e9galement aux professionnels de sant\u00e9 d\u2019\u00e9tablir leurs diagnostics sur un historique pr\u00e9cis bas\u00e9 sur ces donn\u00e9es. Actuellement h\u00e9berg\u00e9 par <a href=\"https:\/\/datascientest.com\/tout-savoir-sur-microsoft-azure\">Microsoft Azure<\/a>, le Health Data Hub n\u2019\u00e9chappe pas \u00e0 la pol\u00e9mique portant sur la souverainet\u00e9 des donn\u00e9es. Actuellement suspendue, l\u2019ouverture du Health Data Hub soul\u00e8ve notamment <strong>l\u2019existence d\u2019un risque d\u2019exploitation des donn\u00e9es par des tiers<\/strong>.\u00a0<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d2d1139 e-flex e-con-boxed e-con\" data-id=\"d2d1139\" data-element_type=\"container\" data-settings=\"{&quot;content_width&quot;:&quot;boxed&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-012069f elementor-widget elementor-widget-heading\" data-id=\"012069f\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Le Health Data Hub : le data warehouse de la sant\u00e9 des fran\u00e7ais<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c422c0b elementor-widget elementor-widget-text-editor\" data-id=\"c422c0b\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>A son \u00e9poque, la carte vitale avait d\u00e9j\u00e0 fait une petite r\u00e9volution dans le domaine de la sant\u00e9. Depuis trois ans, <strong>le<\/strong> <a href=\"https:\/\/www.health-data-hub.fr\/qui-sommes-nous\">Health Data Hub<\/a> <strong>vise \u00e0 int\u00e9grer le<\/strong> <a href=\"https:\/\/datascientest.com\/le-big-data-pour-les-nuls\">Big Data<\/a> <strong>dans les d\u00e9cision m\u00e9dicale \u00e0 travers le pays<\/strong>. Ce groupement d\u2019int\u00e9r\u00eat public a notamment pour mission de construire <strong>un gigantesque entrep\u00f4t num\u00e9rique regroupant les donn\u00e9es de sant\u00e9 des Fran\u00e7ais<\/strong>. Ainsi chaque professionnel de sant\u00e9 aura \u00e0 sa disposition <strong>une banque de donn\u00e9es<\/strong> compl\u00e8te retra\u00e7ant le parcours de sant\u00e9 de son patient, lui permettant de d\u2019\u00e9tablir un diagnostic plus pr\u00e9cis. Cette centralisation de la donn\u00e9e de sant\u00e9 doit \u00e9galement <strong>permettre au patient d\u2019avoir une vue d\u2019ensemble sur sa sant\u00e9<\/strong>, pour pouvoir mieux s\u2019orienter.\u00a0<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2a9012c elementor-widget__width-initial elementor-widget elementor-widget-video\" data-id=\"2a9012c\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/www.youtube.com\\\/embed\\\/JlEX3tBdFqA&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.15.0 - 02-08-2023 *\/\n.elementor-widget-video .elementor-widget-container{overflow:hidden;transform:translateZ(0)}.elementor-widget-video .elementor-wrapper{aspect-ratio:var(--video-aspect-ratio)}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{height:100%;width:100%;display:flex;border:none;background-color:#000}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-wrapper{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .elementor-open-inline .elementor-custom-embed-image-overlay{position:absolute;top:0;right:0;bottom:0;left:0;background-size:cover;background-position:50%}.elementor-widget-video .elementor-custom-embed-image-overlay{cursor:pointer;text-align:center}.elementor-widget-video .elementor-custom-embed-image-overlay:hover .elementor-custom-embed-play i{opacity:1}.elementor-widget-video .elementor-custom-embed-image-overlay img{display:block;width:100%;aspect-ratio:var(--video-aspect-ratio);-o-object-fit:cover;object-fit:cover;-o-object-position:center center;object-position:center center}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-custom-embed-image-overlay{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-custom-embed-image-overlay img{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .e-hosted-video .elementor-video{-o-object-fit:cover;object-fit:cover}.e-con-inner>.elementor-widget-video,.e-con>.elementor-widget-video{width:var(--container-widget-width);--flex-grow:var(--container-widget-flex-grow)}<\/style>\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0ce36d0 e-flex e-con-boxed e-con\" data-id=\"0ce36d0\" data-element_type=\"container\" data-settings=\"{&quot;content_width&quot;:&quot;boxed&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8c144ca elementor-widget elementor-widget-heading\" data-id=\"8c144ca\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Les enjeux \"informatique et libert\u00e9\" soulev\u00e9s par la CNIL<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e00237e elementor-widget elementor-widget-text-editor\" data-id=\"e00237e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>La pol\u00e9mique autour du Health Data Hub, ne date pas d\u2019hier. D\u00e9j\u00e0 au moment de sa cr\u00e9ation, la <a href=\"https:\/\/www.cnil.fr\/fr\/la-plateforme-des-donnees-de-sante-health-data-hub\">Commission Nationale de l\u2019Informatique et des Libert\u00e9s (CNIL)<\/a> attirait l\u2019attention sur <strong>les enjeux relatifs \u00e0 la sensibilit\u00e9 des donn\u00e9es de sant\u00e9<\/strong>. La Commission souhaitait premi\u00e8rement que les patients soient bien inform\u00e9s sur leurs droits relatifs aux <strong>donn\u00e9es personnelles<\/strong>. Deuxi\u00e8mement, que le principe de limitation et minimisation des donn\u00e9es soit respect\u00e9 et enfin la mise en place de mesures de s\u00e9curit\u00e9 appropri\u00e9es pour prot\u00e9ger ces donn\u00e9es. \u00c0 l\u2019issue de son analyse, la CNIL a consid\u00e9r\u00e9 que <strong>la s\u00e9curit\u00e9 des donn\u00e9es mises \u00e0 disposition par la Plateforme \u00e9tait assur\u00e9e<\/strong>. Elle a cependant r\u00e9it\u00e9r\u00e9 sa position sur la question des transferts de donn\u00e9es hors de l\u2019Union europ\u00e9enne.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c79ef8b e-flex e-con-boxed e-con\" data-id=\"c79ef8b\" data-element_type=\"container\" data-settings=\"{&quot;content_width&quot;:&quot;boxed&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-17eee41 elementor-widget elementor-widget-heading\" data-id=\"17eee41\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">La souverainet\u00e9 des donn\u00e9es, un r\u00e9el enjeu pour le Health Data Hub<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4f5d41a elementor-widget elementor-widget-text-editor\" data-id=\"4f5d41a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>La CNIL avait vu juste, c\u2019est bien <strong>l\u2019h\u00e9bergement des donn\u00e9es sur Microsoft Azure qui pose probl\u00e8me<\/strong>. La loi am\u00e9ricaine, permet notamment \u00e0 Washington d\u2019<strong>acc\u00e9der aux donn\u00e9es europ\u00e9ennes<\/strong> h\u00e9berg\u00e9es sur son territoire, sous certaines conditions, ce qui \u00e0 motiv\u00e9 le gouvernement \u00e0 <strong>revoir sa copie sur la question de l\u2019h\u00e9bergeur<\/strong>.<\/p><p><em>\u00ab\u00a0Je partage pleinement vos pr\u00e9occupations relatives au risque de divulgation des donn\u00e9es h\u00e9berg\u00e9es par la plateforme aux autorit\u00e9s am\u00e9ricaines avec le choix de l&rsquo;entreprise Microsoft\u00a0\u00bb<\/em>, \u00e9crivait Olivier V\u00e9ran, le ministre des Solidarit\u00e9s et de la Sant\u00e9, dans une lettre en novembre 2020.<\/p><p>\u00c0 l\u2019heure actuelle, <em>\u00ab\u00a0neuf solutions d\u2019h\u00e9bergement souverain\u00a0\u00bb<\/em> seraient \u00e0 l\u2019\u00e9tude selon le Health Data Hub, qui pr\u00e9voit de <em>\u00ab\u00a0poursuivre la r\u00e9duction en continu de l\u2019adh\u00e9rence \u00e0 Microsoft Azure\u00a0\u00bb<\/em> sans fixer d\u2019\u00e9ch\u00e9ances pr\u00e9cises. De son c\u00f4t\u00e9, C\u00e9dric O, secr\u00e9taire d\u2019\u00e9tat en charge du num\u00e9rique, indiquait lors de ses v\u0153ux \u00e0 la presse en janvier qu\u2019<strong>il ne fallait pas s\u2019attendre \u00e0 un changement d\u2019h\u00e9bergeur dans les prochains mois<\/strong>, en particulier <em>\u00ab\u00a0avant la pr\u00e9sidentielle\u00a0\u00bb<\/em>, jugeant le contexte trop sensible.\u00a0<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Plateforme de partage des donn\u00e9es de sant\u00e9, dont l\u2019autorisation est pour l\u2019instant suspendue, est destin\u00e9e \u00e0 favoriser la recherche. Son h\u00e9bergement chez Microsoft Azure fait pol\u00e9mique, au nom de la souverainet\u00e9 europ\u00e9enne des donn\u00e9es.\u00a0 L\u2019id\u00e9e premi\u00e8re \u00e9tait pourtant noble. Une plateforme centralis\u00e9e rassemblant les donn\u00e9es de sant\u00e9 de tous les fran\u00e7ais. Cr\u00e9\u00e9 en 2019, [&hellip;]<\/p>\n","protected":false},"author":45,"featured_media":161703,"comment_status":"open","ping_status":"open","sticky":false,"template":"elementor_theme","format":"standard","meta":{"content-type":"","inline_featured_image":false},"categories":[2431],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v21.7 (Yoast SEO v21.7) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Le Health Data Hub, une base de donn\u00e9es m\u00e9dicale qui fait pol\u00e9mique<\/title>\n<meta name=\"description\" content=\"La Plateforme de partage des donn\u00e9es de sant\u00e9, dont l\u2019autorisation est pour l\u2019instant suspendue, est destin\u00e9e \u00e0 favoriser la recherche. 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